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Thread: Kung Fu Brother Needs Help!

  1. #1
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    Kung Fu Brother Needs Help!

    On February 29, 2008 my 21 month old son, Daniel, was diagnosed with Mixed Lineage Leukemia(MLL)- A form of Acute Lymphoblastic Leukemia(ALL). This form of Leukemia is harder to treat than ALL and puts him in a higher risk of treatment failure.
    He was diagnosed and treated initially at Stony Brook University Medical Center (Long Island, New York). After hearing what his prognosis was we immediately transferred his treatment to Memorial Sloan Kettering in Manhattan.
    I have been informed that as of today my insurance is classifying this treatment as "out of network" and will only pay 70% of "usual and customary" fees. Which means that whatever Sloan charges above "usual and customary" PLUS 30% of "usual and customary" is my financial responsibility.

    In other words-Help!

    I would like to get whoever would like to volunteer to put on a martial arts demo to help defray the costs of my son's treatment. It is my hope that we raise too much money from our efforts and help others who are my position.
    The website with details on my son is:
    http://www.caringbridge.org/visit/danielcox


    Thanks Everyone, and if anyone has any ideas such as venue or anything else please PM me.

    Chris Cox
    Last edited by ingchao; 03-24-2008 at 07:13 PM.
    Mr. T invented fools, then feeling bad about it, invented pity


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  2. #2
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    We will do a Lion Dance and Gung-Fu demo with you, Chris. Just say when and where.

  3. #3
    Greetings,

    Sorry to hear about your son.

    Have you tried fighting your insurance company? I think it is a bit late in the game for them to drop that on you. They should have informed you of that from the outset. If Sloan Kettering is not in the network, how are they going to get paid in the first place. That confuses me. You need more people on your side advocating for you in order to get the insurance company to do the right thing. Roll up your sleeves and kick butt. Use your lawyers, politicians, media, shoot, anybody who would like to look good standing up for you. And if all should fail, the insurance company will have a black eye for their lack of professionalism, compassion, sensitivity, and goodwill.

    Were you given assurances that the insurance company would cover everything? By whom and when? Here is where you need to start?



    mickey

  4. #4
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    oh yeah, my phone is (631)351-1556
    and anyone who calls with obcene phone calls,
    I like to be called "Sir Gallahad."

  5. #5
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    Quote Originally Posted by TenTigers View Post
    We will do a Lion Dance and Gung-Fu demo with you, Chris. Just say when and where.

    Thanks!!!!!!!!!!!!!!!
    I'm still in the early stages of planning this and have never done anything like this before. I really don't know where to start- besides here.
    Mr. T invented fools, then feeling bad about it, invented pity


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  6. #6
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    Quote Originally Posted by mickey View Post
    Greetings,

    Sorry to hear about your son.

    Have you tried fighting your insurance company? I think it is a bit late in the game for them to drop that on you. They should have informed you of that from the outset. If Sloan Kettering is not in the network, how are they going to get paid in the first place. That confuses me. You need more people on your side advocating for you in order to get the insurance company to do the right thing. Roll up your sleeves and kick butt. Use your lawyers, politicians, media, shoot, anybody who would like to look good standing up for you. And if all should fail, the insurance company will have a black eye for their lack of professionalism, compassion, sensitivity, and goodwill.

    Were you given assurances that the insurance company would cover everything? By whom and when? Here is where you need to start?



    mickey
    We're digging in for a fight with them, but profit is profit and is driven by greed.
    "In Network" means that that particular Dr's fees are covered.
    The insurance co.'s view is that there are other Dr's "in network" that treat this. None of them have the experience that Sloan's does. We want our son to have the best chance possible in fighting this.
    Last edited by ingchao; 03-24-2008 at 07:50 PM.
    Mr. T invented fools, then feeling bad about it, invented pity


    http://www.cansfordan.com

    http://www.fightfordan.com

  7. #7
    Hi,

    I understand you, now. Did they tell you this up front?

    Sometimes, exceptions can be made. I hope so in your case.


    mickey

  8. #8
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    Quote Originally Posted by mickey View Post
    Hi,

    I understand you, now. Did they tell you this up front?

    Sometimes, exceptions can be made. I hope so in your case.


    mickey
    I found out today the exception was denied. We're still gonna fight them though.
    Mr. T invented fools, then feeling bad about it, invented pity


    http://www.cansfordan.com

    http://www.fightfordan.com

  9. #9
    I am an ALL survivor who was treated at memorial sloan kettering... back when I was a kid, they also had bad prognossis (sp?) but I became the exception

    I'd set up a pay pal and ask for donations... honestly if everyone gave you just $10.... that is the wonder of the internet.

    I will pray for your son, please keep us informed
    Chan Tai San Book at https://www.createspace.com/4891253

    Quote Originally Posted by taai gihk yahn View Post
    well, like LKFMDC - he's a genuine Kung Fu Hero™
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    As much as I get annoyed when it gets derailed by the array of strange angry people that hover around him like moths, his good posts are some of my favorites.
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    I think he goes into a cave to meditate and recharge his chi...and bite the heads off of bats, of course....

  10. #10
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    Quote Originally Posted by lkfmdc View Post
    I am an ALL survivor who was treated at memorial sloan kettering... back when I was a kid, they also had bad prognossis (sp?) but I became the exception

    I'd set up a pay pal and ask for donations... honestly if everyone gave you just $10.... that is the wonder of the internet.

    I will pray for your son, please keep us informed
    Knowing that gives me more hope!

    The paypal thing sounds cool. I have an account, how would I set that up?
    Mr. T invented fools, then feeling bad about it, invented pity


    http://www.cansfordan.com

    http://www.fightfordan.com

  11. #11
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    Oh my god chris, that's terrible. If I'm home when this is going on, count on me to do whatever I can. Also, maybe try getting in touch with leukemia/lymphoma society, they might have some help for you. Stay strong si-hing and my prayers and best wishes go out to you, your wife and your son
    Everyone's favorite wooden dummy

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  12. #12
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    Quote Originally Posted by Mook Jong View Post
    Oh my god chris, that's terrible. If I'm home when this is going on, count on me to do whatever I can. Also, maybe try getting in touch with leukemia/lymphoma society, they might have some help for you. Stay strong si-hing and my prayers and best wishes go out to you, your wife and your son
    Thanks, Bro!
    We're in touch with Leukemia/Lymphoma society and I think they're gonna help out with travel expenses.
    Mr. T invented fools, then feeling bad about it, invented pity


    http://www.cansfordan.com

    http://www.fightfordan.com

  13. #13
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    Hope you don't mind, but i set up a facebook group, see if i can get some more people to see it. Also, i'll see if I can do a self-defence seminar for donations up here. I'm pulling for the little guy.
    Everyone's favorite wooden dummy

    "All over people thinking martial arts is for making sexy body. That one is a wrong. Martial art is for making sexy mind and sexy spirit"- Master Po
    http://www.greencloud.net

    Don't be a victim. Be the dominant turkey.

  14. #14
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    Quote Originally Posted by Mook Jong View Post
    Hope you don't mind, but i set up a facebook group, see if i can get some more people to see it. Also, i'll see if I can do a self-defence seminar for donations up here. I'm pulling for the little guy.
    Thanks!
    I appreciate any help you can give.
    Mr. T invented fools, then feeling bad about it, invented pity


    http://www.cansfordan.com

    http://www.fightfordan.com

  15. #15
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    How about this-

    Rik's idea of a Lion Dance begets a bigger one-why not put on a Friendship seminar-get some volunteer people to teach in hour-2 hour blocks and whatever money raised goes to your son and Insurance bills-- I'll donate time to teach a block for you

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